Grace’s Story: 10 Years On From Life-Changing Surgery 

When Grace Winterburn was just 7 years old, her life changed with a diagnosis of severe scoliosis — a condition where the spine curves, sometimes severely enough to affect breathing, digestion, and heart function. In Grace’s case, she had a dramatic S-shaped curve in her spine, measuring 90 and 60 degrees. 

After being referred to The Royal Orthopaedic Hospital (ROH) in Birmingham, Grace and her family were supported by the dedicated team on Ward 11 as she prepared for life-changing spinal fusion surgery at just 11 years old. 

Grace recalls one particular moment from those early hours after surgery: 

“I remember waking up in intensive care, and the first thing I tried to do was sing. I’ve always loved to sing, like I was performing, and it was the one thing I worried about most — that it might affect my voice.” 

The 12-hour operation involved placing two titanium rods and 23 screws into her spine to help straighten and support it. The recovery was long and challenging, but even as a child, Grace approached it with incredible strength and determination. 

Now, a decade later, Grace continues to show that a scoliosis diagnosis doesn’t have to hold you back. At 21, she marked the 10th anniversary of her surgery by taking on the Birmingham Half Marathon — raising an incredible £7,500 for the Royal Orthopaedic Charity. The funds will go directly to the Children and Young People’s Outpatients Department and Spinal Care Service at ROH — the very teams who cared for her during her treatment. 

Grace shared what it felt like to revisit the hospital where so much of her journey began: 

“Today I revisited the hospital where I had my spinal fusion done, and goodness me what an emotional but empowering day it was! To revisit these stairs, which I had to climb up before being sent home, to now running up and down them, made me remember why I am able to live the life I am able to.” 

Reflecting on the race itself, Grace said: 

“I was nervous at the start, but it felt important to take it all in. For me, it was a way to recognise how far I’ve come and show others with scoliosis that you can still take on big challenges.” 

Today, Grace uses her experience to raise awareness and support others going through similar treatment. Through her podcast, @Screwloosepodcast, and social media platforms, she shares honest conversations about recovery, the importance of blood donation, and life after spinal surgery. 

She’s also keen to highlight just how vital blood donors were to her survival: 

“the team quickly realised I’d lost too much blood after surgery and needed a blood transfusion. Thank you to anyone who donates blood, I wouldn’t be alive today if it wasn’t for whoever donated that blood. It saves lives” 

Grace is passionate about ensuring the funds she raised create lasting, meaningful change for young patients at ROH. 

“We’ll be working directly with the teams to make sure Grace’s donation is invested in the areas she cares most about,” said Elaine Bunn, Fundraising Officer at the Royal Orthopaedic Charity. “Grace will be involved every step of the way.” 

In June 2025, Grace returned to ROH to present the funds, revisit the departments, and reconnect with the clinicians who had cared for her 10 years earlier. 

“Visiting the hospital where I had spinal fusion. Turning up there and seeing the building brought back so many memories for me. Its where I was told I wasn’t going to have a back brace, where I was told I needed life changing surgery, where I had my surgery, where I re-learnt to walk. So many things happened that it felt really emotional to go back” 

In recognition of her advocacy and passion, Grace has also joined the ROCstar programme, the Royal Orthopaedic Charity’s ambassador initiative. She’ll be helping to raise awareness and funds in new, creative ways over the next 12 months. 

Grace’s story is a brilliant reminder of how patient experiences can shape the future of care and inspire others to overcome their own challenges. 

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